Busy Days of Prep

We have been busy making plans for JJ’s cancer surgery in a few weeks. Little by little everything is coming together.

When I talked to the surgeon’s nurse last week, she told me about an organization named Pro-Care that has partnered with local hotels to provide lodging for the families of hospital patients at a discounted price. EJ called them last week and they helped him choose and reserve a one-bedroom suite that has a kitchen and laundry facilities in a hotel that is close to the hospital. 

We also arranged to have a friend stay at our house while we are gone and take care of our pets. We had other friends who kindly offered to come and care for our cats, but with this friend staying here, Danny can stay in familiar surroundings and won’t have to be boarded at our vet.

Today we arranged to rent a larger and more roomy vehicle so the trip will be more comfortable for JJ, especially the journey home after the surgery. We didn’t think he would have been comfortable in our little HHR. At first we were thinking of renting a van, but full-sized vehicles were so expensive to rent that we began to think we would have to make the trip in our HHR after all. But then we found a mid-sized SUV that was about half the price of the others. The SUVs aren’t as big as the full-sized vehicles, but they are bigger than the HHR. So EJ called and reserved it.

We were wondering how EJ was going to get home when he returned the rental vehicle after our trip since I will need to stay home and care for JJ. However, someone (family) volunteered to help him.That will be a huge help.

The surgeon’s office was supposed to send me orders for lab and medical tests they want done before the surgery. I was getting concerned that we wouldn’t have time to get them done, especially if they wanted a CT scan in addition to other things. So today I called them to tell them we hadn’t gotten any paperwork yet. It was mailed last Wednesday, she said, so we should have gotten it by now. She said she’d email the forms to me. Fortunately she said that since JJ had a CT scan so recently, he wouldn’t need another and they only need some lab tests. So that is taken care of and is a load off my mind.

The hospital called this afternoon to pre-register JJ for surgery.

Late last week JJ said to me, “Maybe this is one of those times when you ought to over-ride me….and call the doctor” about the issue he’s been having, the one he didn’t want me to tattle to the doctor about. I asked, “So you want me to call the oncologist?” “No……” he said, but I could tell he wanted me to do it without telling me that he wanted me to do it so I called the oncologist’s office and talked to the nurse. She gave me advice and after several weeks of struggling with this problem, it was quickly resolved. We were so happy.

Today EJ made an appointment for later this week to have our taxes done. Usually he prepares his own taxes, but this year JJ also has to file taxes and EJ just doesn’t have the time or the concentration to do both. So we will have them done by tax preparers.

I told JJ that everything is coming together for our trip. He said, “I don’t really want everything to come together” because he really is not looking forward to the surgery. I told him that the only thing worse than having the surgery is to have to have the surgery and NOT have the preparation work out.

We still have some busy days of prep ahead of us, but things are coming together nicely.

Butterfly Wings

My words
My thoughts when put into words

Many years ago, I thought that if I ever wrote a book, I’d title it “Butterfly Wings.” Everyone would think (or so I imagine) that I had given it that name because butterflies are beautiful.  Only I would know that I had named my book “Butterfly Wings” because butterflies are so very beautiful when they are fluttering around freely, but if you try to capture them their fragile wings get ripped and torn, and all you end up with is a lifeless butterfly with mangled wings. I feel like my thoughts are like that. They are bigger and more beautiful on the inside but when I try to capture my thoughts on paper they become mangled and lifeless words. My thoughts are never as alive on paper as they are in my head. 

Me
Me

Whenever I write about a topic such as suffering, as I did the other day, I always end up feeling frustrated afterwards and I’m tempted to go back and erase it because whenever I try to write my thoughts–especially about God–it doesn’t matter how hard I try, I can’t ever adequately put into words what I am really thinking. There is so much vastness to everything that involves God, and everything is so connected and interconnected, and every topic branches off into other topics and subtopics in my head, that there is no way to really understand or write about all the facets of it. In writing about one facet, other equally important facets are not written about so it all ends up sounding one-dimensional and shallow. As soon as I describe one thought, I realize that an opposite thought can also be true, or that there are essential related topics that I couldn’t bring in, or there were nuances of it that I totally missed. And sometimes I discuss these things with others who bring in thoughts I never considered–or that I considered, but didn’t focus on. And then there are statements that are true, but people misunderstood or misused them so they end up hurting people. As a result, the statements trigger pain in those hurting people whenever they hear them, even if a person is not misusing them. I also realize that whenever I state “this is the way” to do something, like comfort others, I often violate my own beliefs even if what I said was true.

Take the topic of suffering, for example. Suffering is connected to God’s love, wisdom, sovereignty, the purposes of suffering, good and evil, faith, and healing, among many others. Each of these can branch off into other topics which branch off into others. For example, a subtopic of suffering is God’s love, which branches off into subsubtopics of His mercy, grace, compassion, and forgiveness. Forgiveness is connected to evil, repentance, reconciliation, sin, judgment, and loops back to love. Forgiveness also branches off into misconceptions of forgiveness, and what forgiveness really is and isn’t. The subtopic of healing includes whether or not God heals everyone and why and why not, which touches on the purposes of suffering and sovereignty and loops back to love. Healing also can include discussions about grief,  insensitive statements to those who are suffering, and what to do or not do to comfort the hurting. The topic of faith can include discussions of what faith is or isn’t and connects with every other topic. Focusing on any one of these topics means that all related topics are not touched on, which can lead to cloudy understanding or misunderstanding. If each topic connected to suffering was written on a post-it-note, I’d have post-it-notes three feet deep stretching to the moon and back twice. And that’s only ONE main topic. It’s impossible to adequately write about God because He is so BIG and DEEP and VAST that thoughts and words can’t really ever capture or contain Him.

I made a very simplified chart to illustrate how my brain sort of works. You can click on the picture to make it bigger. I used the subject of suffering as an illustration because I tried to write about it so recently, but my brain works like this no matter what the topic. Sometimes I get a headache and wish I could turn off the thoughts like a faucet. However, I can’t turn them off, and actually, most of the time, I am glad that my brain ponders.

How I Think
How I Think

Sometimes I wonder why I ever try to explain my thoughts when I do it so inadequately. But occasionally I try to put my thoughts into words because I think that if we never tried to think or write or talk about God, we wouldn’t be able to learn or grow or connect to or comfort others. Sometimes I write my thoughts because I get so filled up with thoughts that I have to write them down so that my head doesn’t overload and explode.

Sigh.
Sigh.

My brain has been filling up with thoughts because of things I have observed and conversations I have heard lately. I tried to write about some of the ponderings, but the words wouldn’t come out right.

My thoughts are bigger on the inside.

When I try to capture them in writing, they get ripped and torn and lifeless.

Sometimes I become very frustrated by the limitations of communication.

This Too Is The Kindness and Truth of God

Whenever a person–or someone he cares about–is diagnosed with a serious illness or other forms of suffering, he begins to wrestle with issues of life and death, the purpose of suffering, and beliefs about healing. He can ignore these things at other times, but they are right in front of him when serious suffering becomes a reality.

People have many different beliefs about suffering, healing, and so forth, and these topics have been debated for a very long time. I know that I won’t resolve any Great Debate about these things but I thought I’d share a few of the things that I am pondering as JJ faces surgery, the next (and hopefully the last) step in his battle with cancer. Besides, I simply like pondering.

It’s very tricky and difficult to write about suffering because suffering is messy, and scary, and not easy to understand. Faith doesn’t always look neat and tidy, the way we think faith ought to. We want answers when there aren’t always answers. Encouragement can sound–or be–ill-timed, clumsy, and shallow, even when our hearts are filled with love for the sufferer. But I will do my best to write my thoughts about some aspects of suffering.

First of all, I’d like to say that I absolutely, positively, believe that God can heal any disease. He wouldn’t be much of a God if He couldn’t. The Bible mentions many instances–in both the Old and the New Testament–in which He miraculously delivered people from illness. I, myself, was healed of a chronic disease several years ago, but only after…well, I will describe that later.

I know that many Christians believe that God ALWAYS heals EVERY disease. I do not believe this. I believe that there will be a will there be a time when God does take away all death, pain, grief, and tears. The Bible, in describing events yet to come, says that there will be a day when “He will wipe away every tear from their eyes. There will no longer be any death; and there will no longer be any mourning, crying or pain…” (Revelation 21:1-4, Complete Jewish Bible). However, that day is not yet here. There is still death and tears and pain.

I do not believe God ALWAYS heals because not only do I not see any people hundreds or thousands of years old, but all a person has to do is talk with friends, participate in prayer groups, connect with people at FB, visit hospitals, or listen to the news, to hear heart-wrenching stories of people who have serious illnesses and disabilities and other problems. Some recover, but not everyone does. Some die, no matter how strong their faith was or how many prayers were tearfully and fervently prayed for them. Not only do I think that God doesn’t physically heal everyone, but neither do I believe He delivers everyone from pain or suffering. Over the centuries and continuing to our times, millions of Jews and Christians have been oppressed, imprisoned, tortured, and killed for believing in Him.

Becoming aware of pain and suffering forces a person to wrestle with why God heals, delivers, rescues, and protects some people and not others. We have to wrestle with such questions as why some people get delayed and miss the Tragic Event that kills hundreds, while others arrive “on time” and are one of the “unlucky” lost? Is God “good” and “praiseworthy” when lives are saved but “bad” and “worth cursing” when lives aren’t? Does He protect some and abandon others? Does He loves those He “rescues” from pain and not love those who aren’t rescued?  Do we somehow have to merit His deliverance? Anyone can trust God when everything is going the way he wants, but what if things don’t turn out well? Can we trust God then?

I think that in order to believe that God physically heals and delivers everyone now, we have to close our eyes to the many who are not healed or delivered. If we believe God is supposed to heal and deliver everyone but He doesn’t, we must believe we are betrayed by a God who doesn’t keep His promises. A third option is to understand that in His goodness, love, and wisdom, God really does see and know more than we do, His thoughts and plans are beyond us, that He has answers that we don’t have, and that healing and deliverance might not always look like we expect it to. This is the option I choose.

I do not comprehend the reasons for suffering. I sometimes wonder if a purpose of suffering is to cause us to wrestle with important questions or to face ourselves in ways that we otherwise wouldn’t. I know that God can reach people through suffering, and teach people about Him through suffering, and heal wounded places in people through suffering. I can understand that often people who have suffered deeply are among the most faith-filled and compassionate of all people. I hear stories of people such as Joni Eareckson Tada, who misjudged the shallowness of the water when she dove into Chesapeake Bay as a teenager and became a quadriplegic, paralyzed from the shoulders down. She was never healed of this injury, but God used her BECAUSE of her injury to encourage many others with disabilities.

In my own life, I have experienced God using suffering for my good. Various sufferings have taken me out of abuse, have drawn me into deeper faith, have taught me deep truths, and has healed wounded places in me. One of those experiences occurred when JJ was around 4-6 years old.

I was raised in a home in which love was based on performance. Deep inside, I feared that I could not be loved unless I deserved or earned it. I felt this not only from my family (who actually did reject me when I didn’t prove my love for them to their satisfaction), but I feared it might be true of God and my husband as well if I couldn’t deserve/earn their love. I knew this was a problem for me so I began praying Ephesians 3:16-19 for myself:

“I pray that from the treasures of his glory he will empower you [me] with inner strength by his Spirit,17 so that the Messiah may live in your hearts [my heart] through your [my] trusting. Also I pray that you [I] will be rooted and founded in love, 18 so that you [I], with all God’s people, will be given strength to grasp the breadth, length, height and depth of the Messiah’s love, 19 yes, to know it, even though it is beyond all knowing, so that you [I] will be filled with all the fullness of God.” (Complete Jewish Bible)

I guess I had sort of expected God to answer this prayer by filling me with warm fuzzy feelings of His love. Instead, I got sick. I became sick with chronic sinus problems and I had at least two bouts of Mono, both of which contributed to me being diagnosed with Chronic Fatigue Syndrome. Doctors do not know what causes CFS or how to cure it. It is debilitating. The best way I can describe it is by saying that a normal person’s “vitality” is like elastic. He gets tired and “stretched out,” he rests, he is refreshed and “bounces back.” But with CFS, a person’s “vitality” is like elastic with no elasticity. He gets tired, he rests, but he is not refreshed and he does not bounce back to strength. If he tries to push himself, he weakens further. When I had CFS, I could cook, do light housework, and homeschool JJ, but no more. On my bad days, I could do nothing. There were times I was so very tired that all I could do was weep–not because I was sad, but because I was so deep down tired. It was awful.

When I struggled with CFS, I felt that I should not pray for healing because I strongly sensed that somehow God had something very important to teach me through it. I wasn’t sure what. Some people, not everyone, knew about my illness and they respected my belief about not praying for healing. However, one well-meaning guy at church accused me of being “too proud” to pray for healing. He told me that “a man needs a strong wife and you are not being a strong wife.” He wasn’t aware that he was aggravating a deep fear, one that God was preparing to heal. I really think people should be very careful about saying such things to people who are suffering. Not only do they make the suffering one’s pain deeper, but they don’t always know what God is preparing to do.

CFS forced me to confront the reality that I did not have the strength to do enough or the ability to deserve or earn love. I could barely do daily tasks, and I was completely unable to “serve God” in the church. CFS also forced me to learn to rely on God, moment by moment, for strength. I couldn’t get through the day without Him. Slowly, as I learned to rely on Him, I also learned to thank Him for His strength, for His help. Then one day, like a lightning bolt driving into my spirit, I suddenly “knew” that God LOVES me with a love beyond imagining. You must understand that this does not mean that we can live any way we want. No. But I was struggling with a deep belief that I had to somehow deserve or earn love, and God was teaching me about His love.

Anyway, immediately after I comprehended God’s love at this deeper level, people suddenly began to pray for my healing. EJ began praying for my healing, my small group began to pray for me, my friends from all over began to pray for me, and the dear couple who cut our hair told me they were praying for my healing. My small group gathered around me and prayed for me and from that moment I was healed. I even tested that it was true by working very, very hard at moving heavy rocks in my garden. I pushed myself, and after a night of rest I was refreshed and bounced back rather than feel limp and without strength.

My story is one of healing, which might confirm to people that God ALWAYS heals, but healing didn’t come because I sought it. Instead, I believed the illness was a “strangely wrapped gift” from God, given to me because He loved me, and I learned to thank Him for it. I don’t think it’s wrong to seek healing (unless God says not to) but too often we focus on physical healing when spiritual or emotional healing might be more essential. The main point is not merely physical health but complete wholeness and a relationship with God.  Sometimes He accomplishes this through healing and sometimes through a person learning to live in faith through the day-to-day struggles. It can take great faith to believe in healing and great faith to trust God’s daily provision. I think God had a specific purpose for CFS in my life, and when the purpose was fulfilled, He removed the disease. However, I have had some forms of suffering for years, and I know that many other people suffer greatly all their lives, and I believe that these sufferings, also, have a purpose, although I don’t think anyone always knows all the reasons for suffering or all that God accomplishes through it.

Some suffering that people go through is so terrible that it breaks my heart. I have at times thought that “If I were God, I would heal, or rescue, or protect these people. I wouldn’t make them suffer like this.” I do not understand the “why’s” of it at all. But I think God hears our groans and suffers alongside us in way that we can’t comprehend. Also, God said His thoughts and ways are higher than ours, and I believe this is true. As I have gone through life, I have experienced heartbreaking things but through it all, I have also experienced wounded places healed, I have learned awesome truths, my faith has grown, I have overcome fears, and many other good things, more numerous to count. In addition, these very sufferings have made me more compassionate toward others. I can honesty echo “Praised be God, Father of our Lord Yeshua the Messiah, compassionate Father, God of all encouragement and comfort;  who encourages us in all our trials, so that we can encourage others in whatever trials they may be undergoing with the encouragement we ourselves have received from God.” (2 Cor. 1:3-4).

All these experiences have caused me to believe that God is utterly righteous and loving and everything that He does is good even if I don’t understand it. I believe that He will always do what is best, even if it hurts, in much the same way (but deeper) that I would always try to do what is best for my son (including tattling on him to the doctor) even if it causes him pain and he hates it. I believe that God is good if He heals and He is good if He doesn’t. He is good if He rescues from pain and He is good if He doesn’t. He is good if He protects from suffering and He is good if He leads us through it.

Several years ago I began to teach myself Hebrew. As I learned Hebrew, I began to meet Jewish and nonJewish believers who are Hebraic scholars and teachers. Both the language and the teachers have revolutionized my faith and life. One of the many teachers I learned from is Skip Moen. He, like many others, stretches and challenges my thinking. I get emails from him each day with Hebrew teachings about the Scriptures. Yesterday I read an email from Skip that went along perfectly with the thoughts I am writing about in this post, which I have been pondering for several days. The whole article, entitled “Backtracking” is very worth reading. It’s short and won’t take long to read. I will quote just a few paragraphs here:

~~~

All the LORD’s paths are kindness and truth for the keepers of His pact and His precepts. Psalm 25:10  Robert Alter translation

All – Do you really believe that all of YHWH’s ways are kindness and truth?  Are you just as likely to proclaim this with David when the plane crashes and everyone is killed, when the soldiers invade and rape village women, when your child is born with a debilitating condition, when you lose your home, when you are robbed?  Are all the ways of YHWH [God] still kindness and truth?

…”We all theoretically know that YHWH is good and that whatever He does or allows serves His purposes.  We all theoretically affirm that we trust in Him because we do not see the beginning and the end.  But when it comes to actual practice, we slip from the holy grail of sovereignty.  We act as if our purposes are the same as the higher purposes of God.  We think the world should behave according to us.  We forget “all” (kol).

I propose a small Hebraic exercise.  Today, no matter what happens, say out loud to yourself, “This too is the kindness and truth of God.”  Each time you are confronted by a bend in the road, a twist in your plans, an unexpected detour, say, “This too is the kindness and truth of the LORD.”  Make an audible declaration of God’s sovereignty and faithfulness right now, and continue to reassert that claim of faith throughout the entire day.  Don’t ask for explanations.  Don’t try to imagine why and why not?  Just declare that all of them are His.”

~~~

I like that: No matter what happens, “this too is the Kindness and Truth of God.”

People often quote Roman 8:28 in times of suffering: “Furthermore, we know that God causes everything to work together for the good of those who love God and are called in accordance with his purpose…” It says EVERYTHING works for good. I think the “everything” in this verses means “everything”–not just the pleasant things things that we enjoy. It means that even though it’s hard to understand, even the bad, painful, scary things are the Kindness and Truth of God. 

I know this post is long, and I probably should split it into two posts or something, but I have a little more to say that is closely related so I will continue:

One of the reasons why I have been pondering all these things is because of JJ’s battle with cancer. We’ve made it through a lot. He survived Chemo. He got through the followup appointment with the oncologist with a good report. Now he faces the surgery to remove the lymph node in his back. This surgery is serious. The surgeon is going to make a long incision in the front of his body. I don’t know how long or where it starts and ends. I tend to get faint when it comes to stuff like this, so my family doesn’t always tell me medical details, thank you very much. Anyway, the surgeon will have to move aside major organs to cut out the lymph node, which is located between his lungs and his spine. If the surgeon isn’t careful, he could easily cut a nerve which could cause “a thousand terrible things,” including paralyzation. And,of course, in any surgery there is a risk of complications which can lead to death. The surgeon does this surgery several times a day, and he is the best in the world, and I truly believe that JJ will come through it just fine, but still, this is my beloved son, and such a surgery is scary. Deep inside me there is a little trembling “What if?”

I could pretend that I didn’t have any fears about this surgery, and then everyone would think I was awesome. I could hide even from myself that I was a bit scared. But instead of pretending it doesn’t exist, I drag it out and stare it down. What if something VERY BAD happens during the surgery? Will I still believe God is good? Or do I only believe it when everything works out the way I want? How deep is my faith? Can I survive the death of a child?

Sometimes it seems to me that when a person confesses to being scared (or sad), Christians immediately conclude that the person has little faith. I believe God made us with emotions, which include joy and happiness and awe as well as things like sadness and fear and struggle. I believe that tears can be just as healthy as laughter. Personally, I think that any parent who says he/she is not scared about his/her son having cancer or having major surgery is not completely honest. In fact, maybe I am being unfair, but I suspect that any Christian who says he is never sad, never scared, never struggles, is dishonest or delusional. Or else he is a nonhuman alien. Or a robot. I think that being sad in sad situations, being scared in scary situations, or struggling when we don’t understand something is NOT necessarily an indication of weak faith. I think it’s normal…and also can be an opportunity for learning and growth.

I think scary situations can cause us to confront and overcome fears–or grow in other ways. Sometimes I think that when we don’t let people express their fears, we isolate them from comfort. I have a friend who years ago, when her children were very small, suffered some health problems. She didn’t know what caused the problems and she was afraid she had something seriously wrong with her and would die. When she mentioned this, everyone around her told her things like “Don’t worry. Nothing is seriously wrong. You will be fine. Relax.” When my friend told me her fears, I didn’t say that everything would be ok. I hate unsupported statements and promises that can’t be kept. “Bad” things happen to even the “goodest” people. I know that sometimes people are diagnosed with serious illnesses. Sometimes they die. I didn’t have medical knowledge that would enable me to diagnose whether or not she had a life threatening condition (and neither did those others) so how could I tell her that she would be ok?  I listened to her fears, which really was anxiety that if she died, her children would have no one to care about their spiritual development. I couldn’t honestly promise that I would make sure they were taught about God because I live several states away and the reality was that I probably would never again see her children if she died. However, I did promise what I could: “If your condition is serious and you die, I promise that I will pray for your children every day.” Then I sort of mentally kicked myself for being the most pathetic encourager ever. But surprisingly that is exactly what comforted her. I think she just wanted to have her fears heard and acknowledged and to know that someone cared about the spiritual well-being of her children. Sometimes I wonder if the best way to encourage someone is not to tell them what to feel or think, but to really HEAR what they are saying. Sometimes I really HEAR people. But, honestly, sometimes I forget to listen. And, by the way, my friend is still alive and raising her children.

If I go through suffering, I want to TRY to remember that this too is the Kindness and Truth of God. I know sometimes I will forget when things get rough. I think that’s ok. I think God knows I will sometimes forget, and He can still hold me close. If others go through suffering, I want to remember to listen to them and just be there for them. I like what my dear friend said: “My theology for suffering — suffer with the one who is suffering, love them, cry with them, laugh with them, be rational and irrational with them, be quiet with them and more than anything give them lots of hugs.” This friend has been an awesome comfort to us as we battled JJ’s cancer. I am not even close to being that awesome at comforting others.

A Father's Grief
A Father’s Grief

I was raised with the teaching that when Jesus (or Yeshua in Hebrew) died on the cross, the curtain dividing the Most Holy Place where the Presence of God was from the rest of the Temple was ripped in two, signifying that we now have direct access to God. I am sure that this event has deep profound meaning, and I am sure that I don’t understand all the depth of it. But this theological teaching seems rather sterile and dry when compared to the Hebraic teaching I have heard. The Messianic Jews–those who believe that Yeshua is the Messiah–say that God the Father was so grief-stricken when His beloved Son was killed on the cross that, like any father in that region of the world, He tore His clothes (the curtain) and caused the sun to darken and the earth to quake. THAT sort of love, and THAT sort of grief over the death of a child, I can totally understand. Yes, a child’s death might be for a world-saving purpose, but at the time of death there is only dark clothes ripping, world-splitting GRIEF.

So why do we expect people to peacefully smile when a loved one dies? A FB friend recently lost her adult daughter. Some of the comments to her statuses about her grief advised her to trust God  and to think peaceful thoughts of Him. I wanted to tell her that it was ok to weep and wail and rip her clothes in grief, and to make the skies darken and make the earth quake because her dear daughter is no longer with her. I can’t imagine going through that kind of agony. I don’t want to ever know what it’s like.

I tend to be very honest with God. I don’t hide what I am feeling or thinking whether it’s positive or negative. Joys, amazement, anger, grief, discouragement, confusion…I tell Him all about it. I don’t pretend that I am something that I am not, that I am strong if I am weak, that I am happy if I am sad. Circumstances such as major surgery can cause a person to ponder and confront various fears. But whenever I get a bit anxious about JJ’s surgery, I drag the fear out into the open, and I say something like this,

Dearest Father,

I absolutely believe that You are loving and You are good. But this surgery is scary. I know that JJ is in Your hands and his surgeon is skilled so I think that he will make it through the surgery just fine. However, I also know that there is always a possibility that he won’t. Sometimes terrible things happen. Please, please keep JJ safe all through this surgery, and please let his recovery go well, and please make this the final victory of his battle with cancer.

I want You to know that I believe that no matter what happens, “this too is the Kindness and Truth of God”–of You. But I also want to tell You that if JJ dies, it will be the darkest time of my life. I will want to rip my clothes in grief, and make the skies dark, and cause the earth to quake–like You did when Your beloved Son died. If such a dark day comes, I will need You to get me through it because I know that I won’t be able to get myself through it. But I want You to know that even if I would make the earth darken and quake with my grief, I still, deep down, will want to believe that somehow, in ways I don’t understand, “This, too, is Your Kindness and Truth.” 

I love You, Father.

Your daughter,
Me

A Wintry Day

Waking up to more snow.
Waking up to more snow.

We woke up to a beautiful wintry world. I don’t know what the official totals are, but I think we got at least 7 inches of new snow.

I believe I must be the only person in the whole Midwest who welcomed the snow rather than grumbled and growled about it. I used to prefer summer and dislike winter, but I have grown to love winter. I still like summer, but as I’ve gotten older, the humid heat (yes it gets hot in Michigan) melts me like a snowman and the hordes of mosquitoes imprison me in the house. I could never live in the South.

Winter has wonderful things about it, even for someone like me who doesn’t ski or sled or ice fish. I like the cozy comfort of sitting next the wood stove on a cold day, wrapped in a quilt, with cats on me, sipping a steaming hot cup of coffee.

And I love watching the birds. It fills me with deep delight. Slowly, bit by bit, I am adding to my bird feeders. Our feeder pole is in front of the large living room window and holds four feeders. We also have two window feeders at the large window. I placed the feeders so EJ could clearly see them from his recliner. I recently bought another, identical feeder pole. I placed it in front of the other window so I can clearly see it when I sit in my usual place on the love seat. It doesn’t yet have many birdfeeders on it, but I hope to add more as soon as I can, bit by bit. In the summer I want to hang a feeder or two for hummingbirds. It is my goal to have several birdfeeders located so we all will be able to watch birds no matter where we sit in the living room. I also want to plant flowers that attract birds.

When it snows hard, we get many, many birds flocking to the feeders. The nearby trees and bushes and fence come alive with scores of birds waiting their turn at the feeders. This snowy day, I saw cardinals, sparrows, chickadees, wrens, tufted titmouses (titmice?), house finches, gold finches, juncos, mourning doves, starlings, red-winged blackbirds, blue jays, woodpeckers, and even robins (who go South for the Winter and return to Michigan in the Spring) at the feeders. It’s totally awesome. EJ says he doesn’t like the starlings, but I like all the birds, even the hawk. It’s rather traumatic to watch her carry off a dove, but even hawks have to eat.

I also like watching the cats watch the birds. They are fascinated by the birds. Little Bear and Timmy, who are younger cats, can’t resist rushing at the window and watching all the birds fly away. Luke will stand so his nose is inches from the birds in the window feeders and hold very still for several minutes as he watches them. KeeKee just likes to sit on the window sill and watch them.

After EJ left for work, I took Danny for a walk. I love walking in the winter. I love how beautiful a snow-covered landscape is. I like the cold burning my cheeks and the cold wind whipping around me. I fell four times today at slippery places, but I didn’t mind. After an initial “OUCH!!” I laughed. There are mountains of snow where snowplows have pushed snow all winter long. I always get an itch to climb them, or play King of the Mountain, or dig tunnels into them like I did when I was a child. For a minute, I imagined inviting a bunch of adults to play King of the Mountain and then I imagined old brittle bones breaking. It’s probably good that adults don’t play King of the Mountain.

On today’s walk, a man shoveling out his driveway said to me, “Whew. All this snow. Hopefully this will be the last time I have to do this before Spring.” I paused to talk to him for a bit. He said shoveling snow is hard on his back because he has back problems; I mentioned EJ’s back problems. We talked about testicular cancer. He had had testicular cancer years and years ago when he was 14 years ago. This man lives next to his nephew, who a few years ago was elected mayor of a nearby city. What is remarkable about that is that the young man was 18 years old at the time he was elected, and had just graduated from high school. He is the youngest person ever elected mayor in the USA.

After our walk, I dropped Danny at home and then walked to the post office. I was almost to the post office when someone called out from their car, “Do you work at the library?” The library is next to the post office, but I was closer to the post office than the library so I don’t know why he assumed I worked at the library. “Book lover” must ooze from my pores or something. Our town is so small that our library is only opened on Mondays, Wednesdays, Fridays, and until noon on Saturdays. This is Wednesday so the library was supposed to be opened. I called to the man that I had read on FB that the library was closed today because of the weather. “Ok, thanks!” he said and then he drove away.

Here are pictures of my day:

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Oh, I should mention something about JJ. With the surgery scheduled, we can now start making plans. I realized that I had forgotten to ask where the surgeon’s office is located (for the consultation) or which hospital JJ’s surgery will be at (Duh!) so today I called to get their addresses. JJ was curious about long the surgery will take so I asked about that as well. I found out the surgery will take three hours.

Now that I have addresses of the surgeon’s office and hospital, we can arrange nearby lodging for EJ and me. The nurse told me yesterday that there is an organization that arranges hotel rooms at greatly discounted prices for families of patients. EJ will call them tomorrow to make reservations. Meanwhile I am working on providing care for all our pets. EJ will look into renting a van or SUV so JJ won’t have to spend 5-6 hours in a small vehicle on the way home from Indianapolis.

The Doctor Appointment

Last night I didn’t sleep well. My thoughts wouldn’t shut off and I tossed and turned until after 2 a.m. Then I came downstairs. JJ was still up because he couldn’t sleep either. I settled into EJ’s recliner. Several cats settled next to me. When I can’t sleep, I come downstairs to sleep because I find the cuddling cats very comforting–like living teddy bears. I fell asleep for a couple of hours, and then I woke and moved to the love seat. The cats settled in around me and I fell asleep again, and then I heard EJ come down to use the bathroom, and then I fell asleep again. Then, sigh, it was morning and time to get up. I actually only had a series of naps.

Usually JJ says I can blog freely about our cancer journey, but he asked me not to write about the specific health issues he’s been struggling with since Chemo ended. Sometimes a person just wants to not have everything broadcast to the world. I respect that. So I am not revealing those health issues, but they have made him rather miserable and he’s been “just tired of not feeling well.”

For the past week, as his doctor appointment approached, JJ and I have had a bit of a conflict. He has lectured me to NOT TELL THE DOCTOR about his health issues because he doesn’t want the doctor to examine him, or send him to a specialist, or anything like that. I remained quietly noncommittal, making no promises either way. I didn’t want to argue with my son, but I also know that minor problems can quickly become major problems and I wasn’t going to risk him experiencing complications during surgery because he didn’t want to tell the doctor about his health problems. Two days ago he stressed again, “Don’t tell the doctor. I mean it, Mom. Let me handle it.” Then yesterday, “I know you are going to tell the doctor.” Duh, we both knew I was going to. This morning he said again “Don’t tell the doctor. I mean it. If you tell him, I am going to revoke my permission for you to be given medical information about me.” I said, “Go ahead. You are an adult and you have the freedom to do that. But you realize that there will be things I am doing for you now that I won’t be able to do then, right?”

Today a new intern led us through the maze of corridors at the Cancer Center to an exam room. Usually the doctor appears shortly after we arrive, but I think the intern forgot to let him know we were in the exam room because we waited 30+ minutes. EJ finally went to the bathroom, and he ran into the doctor’s nurse, and when she saw him she got a grim look on her face (because I think she realized the doctor had not been notified) and shortly after that the doctor arrived.

But when we first arrived in the exam room, the intern took JJ’s blood pressure and asked him the usual list of questions–like how is his appetite, does he have any trouble breathing, does he feel any pain, yada, yada, yada. JJ didn’t mention his problem so I asked him, “Are you going to tell her about the health problems you have been having?” After she left, JJ turned to me and said, “I TOLD you that I would mention this problem. I TOLD you not to say anything. I TOLD you I can handle it.” I said angelically, “Well, technically, I didn’t tell the intern about your problem. I asked YOU if YOU were going to tell her. Can I help it if she was in the room and overheard?” In a battle of wits and wills, I can hold my own.

I think I have an inner child who is mischievous and rebellious. Sometimes JJ draws it out of me. Like when JJ told me in previous years “Don’t embarrass me by dancing in the grocery store,” I suddenly always had a strong urge to dance in the aisles. I’ve looked around to see if anyone was watching and then I did a cha-cha-cha so only JJ could see me. “Stop it, Mom!” Or when we approached the automatic doors at a grocery store, JJ has whispered, “Do NOT act like you are opening the doors with the Force. You are NOT a Jedi.” So, OF COURSE, I waved my hand as if I was a Jedi using the force to open the grocery store doors. He really shouldn’t encourage me.

So when JJ began to lecture me about NOT telling the doctor, I did what any mischievous child would do. I stuck my tongue out at him. “DAAAAADDDD! Mom stuck her tongue out at me!” I did it again. We started laughing. I made a loud croak in my throat and made a squishing noise with my mouth. We laughed some more. We laughed until we cried. “GEESH, what is WRONG with you today, Mom!” I said, “I didn’t get enough sleep last night,” as I poked him in the leg and then poked him again. “Stop poking me, Mom. DAAAADDDDD, Mom keeps poking me!”

Finally, the doctor arrived. He said that all of JJ’s tests look good. He said the Cancer marker numbers are really low but there is something still there in the lymph node. JJ had three types of cancer cells in his body–two were cancerous and one was benign. The doctor believes that the “something” is probably benign but he doesn’t want to risk any cancer cells remaining in his body so he wants JJ to have the lymph node removed. He said he wants JJ to have the very best care so he is sending him to the best surgeon in the world for this type of surgery. Then he exclaimed, “You are going to INDEE-AAA-POOLIS!” He said it as if we had just won a dream vacation, which this trip will definitely NOT be, but he made me laugh.

We asked whether JJ will still need weekly blood tests. The doctor said he will not, but he will have to have CT Scans every other month for the next two years, and he will need regular followup appointments with the doctor, and he will need his port flushed out every 8 weeks or so. In a year or so, he will get to have his port removed. They keep it in that long to make sure the cancer is gone and he won’t need more Chemo. So JJ still has a lot of medical things in his future, but I think they won’t be as difficult as the other stuff he has suffered.

Because his white blood counts are stronger, JJ doesn’t have to be quite so careful to mingle with people, but he still mustn’t be around sick people.

I waited all through the appointment for JJ to mention his health problems, and only when the doctor was beginning to shake our hand before leaving did I speak up about the Problem and ask if it would affect the surgery. The doctor didn’t seem too worried about it. When we got home, I said to JJ, “See? I did really well. I mentioned it only at the end when you still hadn’t said anything.” He said I did good.

After we left the exam room, we took a detour into the hallway with the infusion rooms so JJ could visit the medical staff who had cared for him during Chemo. The were all glad to see him, they said he was looking well, and they all gave him hugs.

Then it was home, and I fixed lunch, and EJ went off to work.

This afternoon I got a call from surgeon’s office. JJ has a consultation with the doctor on March 31 and his surgery is scheduled for April 1. JJ will have to have several medical tests before then. She said this time that JJ will probably be in the hospital for 3-4 days. We will now have to make plans: schedule lodging for us, arrange care for our animals, and so forth. There are lots of things to do.

Hurdles

This is how much snow we had left this afternoon after several days of warm temps in the 30s and 40s.
This is how much snow we had left this afternoon after several days of warm temps in the 30s and 40s.

We ran out of milk, so this morning I walked to the little store a block and a half away to buy more. The temp was 37 degrees! The high temp was almost 50 degrees! With temps so warm, I left my mittens at home and unzipped my coat. We have to enjoy the warm weather while we can because we are expecting cooler temps and more snow in a couple of days. It looks like we could have 5-8 inches of new snow.

As I walked to the little store, I heard strange bird calls. I couldn’t remember what kind of bird it made such a sound. I looked around but couldn’t spot the bird. Then I saw three sandhill cranes flying overhead. It was their cry I heard. I paused and watched them. When I left the store with my milk, I spotted a dozen more. Sandhill cranes are an indication that Spring is coming. I am always excited whenever I see the cranes in a field or flying overhead.

Sandhill Cranes Picture from: ecobirder.blogspot.com
Sandhill Cranes
Picture from: ecobirder.blogspot.com

When I got home, I researched sandhill cranes on the internet to learn more about them. I read this morning that “Cranes from southern Michigan migrate to Florida.” People from Michigan also often go to Florida for the winter. “Depending on the weather, most leave in   November, but some have stayed through December. They usually return to Michigan in late February or early March. Sandhills prefer to migrate when the sun causes warming thermals to rise and there is a tail wind. By taking advantage of tail winds, flying in formation and by soaring, they are able to reduce energy expenditure by up to 30%. Flying at speeds up to 50 miles per hour, they can cover nearly 500 miles a day. Often they reach altitudes of over a mile.” I also learned that their bugling can be heard 2.5 miles away and that “Adult breeders maintain long-term pair bonds, but they will ‘divorce’ especially if the first attempt at reproduction is unsuccessful.” You can learn more about them and hear their cries at the AllAboutBirds.Com.

Thousands of tiny bird "footprints" in the snow."
Thousands of tiny bird “footprints” in the snow.”

I am continuing to enjoy the birds at our feeder. I think it’s interesting that they walk all over the yard, leaving thousands of tiny prints in the snow.

We had expected JJ to feel much better by now, but he continues to struggle with some health issues. He’s been having a low temp as well and he says he is feeling “unwell” and tired. He often tells me that he is so tired of not feeling healthy.

Tomorrow JJ has an appointment with his oncologist. When we began this cancer journey, every doctor told us news that was worse than we were expecting, so while I approach the appointment with expectation that the report will be good, I also feel slight trepidation as well. I expect we will learn how the Chemo has affected JJ cancer. The woman who did the PFT test last week said that JJ’s hemoglobin was very low, so I want to discuss that with the doctor and I also  want to know what his white blood cell count is. JJ has told me very strongly that he doesn’t want me to tell the doctor about his health issues, but we both know that I will tattle if JJ doesn’t tell the doctor what he is struggling with–because any problem left untreated could become major and I don’t know how the issues will affect his surgery. JJ will just have to be “less than happy” with me for a bit. My friend, who has become an honorary aunt to JJ, has said that if I don’t tattle on JJ, she will call the doctor and tattle. We love him so much we are willing to do what we believe is best for him even if he’s not happy about it. Poor JJ.

A couple of weeks ago, EJ’s Mom became very sick and had to be taken to the hospital. She was in there for a week or so and then a couple of days ago was put into a rehabilitation center. Family reports that she is not doing very well. She has been saying that she wants to see all her children “one last time.” I do not know if she is saying this because she feels so ill or becomes she senses that her death is approaching. EJ really wants to see his Mom (and so do I), especially if this might be the last time, but we are all very concerned about bringing home any sort of virus or infection to JJ when his immune system is very weak and he can’t fight off sickness. We can’t forget that EJ’s Dad was very sick just before he died, and EJ caught his virus and was the sickest he had ever been in his life. Our first concern has to be for our son. But it causes anguish to not visit EJ’s Mom.

JJ’s Honorary Aunt recommended a product that might help him so EJ and I went to a pharmacy to buy some. Since we were in town, we also stopped at the grocery store. While we were there, I ran into a dear, sweet friend. She and her husband always cut our hair for us, but they also always pray for us. I told her about EJ’s Mom and she told us that no Grandmother would not want to put her grandson at risk, and she would totally understand if we can’t go see her. “So let your mind be at ease,” she said. Then she put her arms around both of us and prayed for us. That was, as my “Honorable Aunt” friend often says, “a hug from heaven.”

Hurdles
Hurdles

We are trying to mentally, emotionally, spiritually prepare ourselves for JJ’s surgery. It is such a major surgery that it is a bit scary. I expect the surgery to go well because we will have of the best surgeons in the world for this type of surgery, but still…this is a very serious surgery, and bad things sometimes happen, and there are no guarantees. And this is our one and only child. This feels like another huge hurdle that we have to overcome. We are getting a little tired of hurdles. 

Surgery

EJ and I have battled wooziness, congestion, and a cough all week. I’ve been concerned that JJ would get sick as well because of his weakened immune system. He has struggled with some lingering effects of Chemo, but he doesn’t seem to be coming down with our sickness.

On Wednesday Eric got a reminder from our doctor’s office that his annual physical was on Friday. Physicals are scheduled months in advance, and with JJ’s cancer and all, we had forgotten all about it. EJ needed to have his blood drawn on Thursday so rather than return to the lab again on Friday for JJ, we decided to have them both get their blood drawn on Thursday. This way, JJ didn’t have to accompany us to the doctor’s where he could be exposed to who knows what viruses and germs. I went along with EJ to keep him to company, remind him of what to tell the doctor, and to help him remember what the doctor told him.

After EJ went to work, I walked to the post office for our mail and then went to the library to see if any new videos were available to borrow. It was very sunny and warm today. The highs were in the lower 40’s and the snow began to melt into drips off the roof and puddles on the sidewalks. We still have a lot of snow on the ground and mountains piled high along streets and at the edges of parking lots, but it now feels as if Spring is a possibility.

After I returned from the post office and library, I took Danny for a walk. It was so warm that I left my mittens at home and after a bit I unzipped my coat. We took our regular route but rather than go home, we kept going past our house and walked to the telephone  company to drop our payment in the drop box outside the building. Danny loved his walk but he didn’t like walking in the puddles and kept trying to avoid them.

Later this afternoon I got a call from the office of the surgeon in Indianapolis who will do the surgery to remove the lymph node in JJ’s back. The woman I talked to said they had waited to call until they received JJ’s medical file and CT Scan films from his oncologist. She will now schedule his appointment and get back with me. The surgery will probably take place at the end of March or beginning of April, so it is fast approaching. At least it won’t be until after JJ’s 19th birthday, which is March 21st. I thought it would have really stunk if JJ was in the hospital on his birthday.

In some ways it is nice to finally get moving on the surgery. The sooner we get it over with, the sooner JJ can recover and get on with his life. However, it also makes me feel nervous because it is a very major surgery. The cancerous lymph node the surgeon will remove is located between JJ’s lungs and his spine. The incision will be made in the front of JJ’s body and the surgeon will have to move aside organs and stuff. If the surgeon is not skilled, he could cut a nerve in JJ’s spine and JJ could suffer paralyzation or other terrible things. Fortunately, JJ’s oncologist said this surgeon is the best in the world which is why he is sending JJ to him. He said he could have chosen someone local to do the surgery, but he’d rather have a surgeon who does this type of surgery 3-4 times a day instead of 3-4 times a year. It is comforting to know that this surgeon is “recognized as a world authority on the surgical management of testicular cancer.” But, still, this is my little boy we are talking about, and I won’t rest easy until JJ recovers from the surgery without harm.

After the surgery, JJ will remain in the hospital for 4-5 days.

 

The Waiting Room

I feel better than I did on Saturday, but I am still struggling with congestion and a cough. Last night I only got a few hours of sleep because I couldn’t get comfortable and my coughing kept me awake. It was a short night because we had to get up at early. JJ had a morning of medical procedures. I always get up earlier than the guys so I can get dressed, get the pets fed, and prepare breakfast.

EJ was getting the car started and I had set my coat down on a bench so I could get my boots when a cat barfed on my coat. It was only a little, most of it went on the floor, but ewww. I cleaned up the barf from the floor and washed it off my coat with a washcloth and then put the coat on. I didn’t have time to search for another. I will definitely wash my coat SOON.

One of the two nasty coffee-flavored barium drinks JJ had to get down.
One of the two nasty coffee-flavored barium drinks JJ had to get down.

At the hospital, we went to the Patient Registration desk to announced that we had arrived and then was directed to the appropriate waiting room. JJ was given two bottles of barium to drink. Last time JJ was given a CT Scan, he chose to have the berry-flavored drink, but this time he chose to have a coffee-flavored drink hoping that it would taste better. It tasted worse, but as I told JJ, it was worth a try. It took him a half hour, but he got the drinks down.

Waiting rooms are interesting places. Sometimes everyone is silent and sometimes people are more talkative and connections are forged. I always wonder about people because everyone has a story of why they are there. Today everyone was silent until two women came in, one elderly and one middle-aged. I thought they were mother and daughter, but found out that they were neighbors. The younger one got people talking, first about the best and worst places to buy paczkis for Fat Tuesday (which I didn’t contribute to because I don’t celebrate it) and then moving on to other topics such as stories of the dogs we all own. We told them about Danny and they told us about their dogs. The older woman, at some point, mentioned that she had just lost her husband. She was obviously fighting tears the whole time we were there. I told her that I was so very sorry and my heart was very grieved for her. I can’t imagine how difficult it would be to lose a husband.

After JJ was taken away for his CT Scan and the elderly lady was taken away for her procedure, the middle-aged woman said that she was the lady’s neighbor. The Lady and her husband used to do everything together but then the husband was diagnosed with a blood condition and given six months to live. He died five days later and she is really struggling with grief. The couple had always been very healthy but after her husband died, the woman started struggling with her own health: she has to have thyroid surgery, but a spot was found on her lung. Her test today was to verify that it is a mass and not a smudge on the film or scarring from a cough she has been having. The couple never had any children and the Lady has no family to help her, so the Neighbor takes her to appointments and tries to encourage her, calls her every day, prays for her, gets her out of the house, and so forth. I feel so bad for the Lady, but it is good that she has a Neighbor who cares for her.

I told the Neighbor that our son has cancer, and I shared our story a bit. I told her that this has been an eventful year for JJ: He became an Eagle Scout, graduated from high school, started his first job, began college, and then was diagnosed with cancer. I said that JJ has been very, very courageous through all this. She said she thought her life was tough until she heard JJ’s story. People tend to say that when they hear JJ’s story. I think his story touches them because he is so young. Plus, it’s hard to see such a nice young man struggle with cancer.

It’s interesting because we think our story is just something we live through with as much faith and hope and love that we can. We have gone through difficulties, yes, but we hear other stories that are much more difficult and sadder than ours. But they think our story is more difficult, much more difficult than theirs. It reminds me of a time a friend and I were sharing similar struggles through email in order to encourage each other. When I heard her story, I sent her an email telling her that her story was very sad and much more difficult than mine. At the same time, I got an email from her saying that she thought my story was very sad and much more difficult than hers. We thought that was funny. I think that being able to see the suffering of others prevents us from feeling sorry for ourselves.

I always think of something a friend told EJ a few years ago: The friend complained to a co-worker about his life. The co-worker listened and when our friend was finished, he said, “That is a very sad story. Everyone has a sad, sad story.” Then the co-worker shared his own story, and the story was so terribly sad that our friend felt he had been complaining about nothing in comparison. Whenever I want to complain, I remember that “Everyone has a sad, sad story” and many are so much more difficult and sadder than mine.  We have so much to be thankful for because we have each other and so very many blessings. Our difficulties have taught us so much and deepened our faith and love for God and each other. They have given us compassion and understanding for others. That is not sad.

When JJ got back from his scan, the Neighbor said to him, “Do you mind if I give you a hug?” JJ said he didn’t mind, and the woman gave him a big hug and told him she’d be praying for him.

Waiting rooms are interesting places.

After the CT Scan, JJ needed to have a Pulmonary Function Test (PFT) to measure how his lungs are doing. Chemo could affect the lungs. We went back down to the Registration Desk in the Lobby and the woman there notified the PFT woman that JJ was ready, and then we were directed to go down a hallway, turn left, take an elevator to the next floor up, and the PFT woman would meet us. We made contact with the correct person, who led us to the PFT room. JJ sat in a booth and breathed into a tube when directed while we chatted. After maybe a half hour or so, the test was over and we were on our way home. Another step is completed.

We were about four miles from home when traffic came to a halt. EJ looked ahead and said that he could see that there was a bad accident at the junction where two highways split off. After waiting about 10 minutes, we did what many others were doing–we turned around and took an alternate route home. I pray everyone survived the accident.

I fixed leftovers for lunch. Then EJ had to leave for work. He left early so he could take a different way to work to avoid the accident site in case it wasn’t yet cleaned up. After EJ left, I brought in the day’s firewood and then JJ and I lay down–he on the couch and I on the love seat–and we took naps.

Sunday

Yesterday went by in a blur. We made it through the whole winter without getting sick, but yesterday, March 1st, both EJ and I were sick with swimmy, achy heads, coughs, sneezes, and aches. We felt awful, so we didn’t do much. Hopefully JJ will not get sick. I am more concerned about him because Chemo lowered his resistance to illness.

Today EJ and I work feeling much better. I am still coughing and blowing my nose, but my head isn’t swimmy. We decided to the farm market-ish store and get some bird seed because we were almost out. The birds eat like pigs. There were several types of bird seed to choose from. We bought a 15 lb bag of fruit and nuts and a 40 lb bag of assorted seed. We couldn’t see what sorts of seeds were in the bags and I was a little disappointed that the 40 lb bad had more corn and nuts in it and fewer smaller seeds. I hope our regular birds like it. EJ says birds of one type or another will be drawn to it. I think next time I will get a bag that has more of the smaller seeds in it.

After we bought the seeds, we went to the grocery store. I had planned to get only a few items, but we ended up filling the cart. EJ and I have always grocery shopped together and we have a lot of fun doing it. It always seems more like a date than a chore. We found ourselves in the garden aisle, and we bought seeds and garden gloves even though there is still a lot of snow on the ground. In fact, we got 4-5 more inches of new snow overnight. But in March we begin to dream of spring.

I also got another cilantro plant. The cats chewed on the other one I bought and I am not sure it is going to live. I also bought a parsley plant so we can have fresh parsley for Passover. I am putting these plants in the kitchen window so maybe the cats will leave them alone.

As we were shopping, I got a text from JJ asking us to stop and get Chinese food. Since I had a gift certificate from a dear friend, I called to order meals from the Chinese restaurant and we pick them up on the way home.

When we got home, EJ and I carried the groceries into the house. I put the foods that required refrigeration away and then we stopped and ate our Chinese food. Afterwards I finished putting all the groceries away, then swept and mopped the floors.

It was a fun day.

 

The Bald Eagle

Even though JJ is done with Chemo, he still has to get his weekly blood draws for a while. So this morning we all got up at about 8 a.m. JJ was grumpy about having to get up early (he is a night owl, not a morning person) and he was not happy about having to have his blood drawn. For a bit he rebelled, “I am NOT going. No.” He said later that having his blood drawn makes him feel like he’s still having Chemo. But at last we were all in the car and on our way.

Bald Eagle
A Bald Eagle

We were driving through the next town, ten miles away, when I saw a bird soaring overhead. Usually I would have assumed it was a hawk or a crow or something, but I’ve recently heard reports on FB of bald eagles being seen in our area. EJ has said that he has seen them too. I have seen bald Eagles in zoos, of course, but the only time I saw them in the wild was when we visited friends in Iowa and we saw a bunch of bald eagles as we crossed into Minnesota while sight-seeing. I have never, ever seen bald eagles in our area. But remembering that people have seen bald eagles, I looked at the soaring bird intently and then the sun lit up his white head and tail feathers. “OH! OH! I SEE A BALD EAGLE!” I exclaimed. I was so excited. I had my camera with me but I was too busy watching the eagle to pause to take a picture.

We have cougars in our area too. For several years people said they saw cougars in Michigan while the Michigan Department of Natural Resources denied it, but finally it was confirmed. EJ and JJ have seen glimpses of them, and we have several friends who have seen them, but I have never seen one. I am always looking the wrong way to see glimpses of cool thing like cougars. So I was thrilled that I saw the eagle.

The guy who took JJ’s blood today was the one who has the sign in the room that says “Vampire on Duty.” If I had his job, I would have such a sign too. I think we made him laugh with our banter.

Challah Bread
Challah Bread

After we left the lab, we went to the bakery for challah bread. When we don’t have to go to the lab on Fridays then I will make my own challah bread for Shabbat again. I love making challah bread. Besides it feeling so satisfying to make such a beautiful, artistic bread, it prepares my heart for Shabbat. I love saying the traditional blessings in both Hebrew and English as I divide the dough and prepare to braid it:

ברוך אתה ײ אלהינו מלך העולם המוציא לחם מן הארץ

Baruch attah Adonai, Elohaynu, melech ha-olam ha-motzi lechem min ha-aretz.

Blessed are You, Lord our G-d, King of the universe, who brings forth bread from the earth.

But until I have Fridays free to make my own Challah bread, it’s really fun to stop at the bakery. As we approached the store, EJ pointed to a sign in the window: “Help Kneaded.” Ha, ha. As soon as we walked in the door, we were offered generous samples of several different items. I chose a sample of a cinnamon roll, I think JJ chose cinnamon bread, and EJ had oatmeal cookie. Then we selected our two loaves of challah bread, we bought a loaf of wheat bread, and we bought a pumpkin roll, which I have been hungry for since I sampled it during our first visit to the bakery. They have been out of it every time we stopped after that. Pumpkin rolls are very delicious.

I would have liked to stop to buy some bird seed, but we didn’t have time. The birds eat like pigs, but I really, really enjoy watching them. They bring me a lot of delight. Birds are cool.

After the bakery, we drove to the meat market and then we drove home. I brought in the day’s firewood and prepared our Shabbat meal.

After EJ left for work, I took Danny for a walk. I think the temperatures had dipped below zero overnight, but it had warmed up to 12 degrees. It was a chilly walk, but I am enjoying walking Danny again after all those weeks of not being able too. I like cold more than hot. At the end of our walk, I dropped Danny at home and then walked to the post office and the library. I was hoping to borrow some of the movies that have just been released to DVD, but they were already checked out by others. I kind of figured they would be.

Now I am sitting here, relaxing, and enjoying the heat of the wood stove.

Exercise

It’s nice to have a week without any Chemo.

Yesterday morning I went to the grocery story in a nearby town to pick up a few things. I was really surprised to see employees busy in every aisle. At first I thought they were doing inventory, but then I realized that they were pulling items off the shelves and whole shelves were empty. I asked an employee what they were doing, and she told me that they were extending the shelving and rearranging the store. It was very difficult to do shopping with employees and customers crowding the aisles and so few items available on the shelves. EJ stopped at the same store on his way home and he was told that the store was going to sell more organic foods. I look forward to that.

While I was at the store, EJ fixed lunch. It was mostly ready by the time I got home. It’s nice to have a husband who enjoys cooking.

Last week the temperatures were in the 40s so some of the snow melted into slushy pools. Then the temps got cold again and everything froze. Now the sidewalks are very icy and treacherous to walk on. Tonight the temps are supposed to get even colder–down to 4 degrees tonight and -9 tomorrow. There is a winter advisory out that warns that the weather will become hazardous with around an inch of new snow, wind gusts of 30-35 mph causing blowing snow, and wind chills to 20 below zero. Brrrr.

Today the skies were blue, but I saw a rainbow. There most be ice crystals in the atmosphere. I tried to take a picture of the rainbow, but it didn’t show up in the photographs.

After weeks sitting for hours and days at the cancer center, I am determined to get back in shape. I have been walking Danny every day and EJ joins us whenever we can. Danny loves to be walking again and dances around when he sees me get the leash. The cold makes my face burn as we walk, but it feels really good. When the weather gets warmer, we hope to take longer walks together.

In the afternoons I have been making myself get on the treadmill. My friend in Texas also wants to exercise so we talk to each other on the phone while we both huff and puff on our treadmills and groan that we are going to die. It’s nice to be able to exercise together, even if we are in different states, because we encourage and motivate each other to keep going.

 

JJ is still not feeling well, but he is feeling better every day.

Future Plans

Both Saturday and Sunday I sat down and began to write a post, but I never finished them. For some reason, an intense week of Chemo really tires us and it takes several days before we regain any energy.  We have been sleeping late, taking naps, and watching a marathons of Downton Abbey. We have heard a lot about this BBC series from friends, but have only just started watching it on Amazon Prime.

Friday was JJ’s last day of Chemo, but it will take him a few days to feel well. He is so tired of being sick and taking medications so he tried not taking the anti-nausea meds. I thought it was too soon, but I can’t force the pills down his throat, and I can understand his being tired of them. He battled nausea all weekend. Yesterday he came out into the kitchen, sat in a chair, and said, “I feel dizzy and I think I am going to pass out.” I called to EJ to help me get JJ back to his couch when JJ began to heave. He made it to the wastebasket, but he was there for quite some time vomiting. Poor guy.

To encourage ourselves, we keep exclaiming, “No more Chemo! No more running to the Cancer Center every day! No more hours in the Infusion Room. Soon there will be no more nausea!” We also exclaim that soon JJ’s hair should start growing back. We’ve heard that the hair can grow back as a different texture or color. We wonder what it will look like when it comes back. Black? Red? Blonde? Brown? Straight? Curly? Fine? Thick? Soft? Wiry? 

Mr. Incredible
Mr. Incredible

We just have one more major hurdle to get over: the surgery in Indianapolis. We are sort of in limbo right now because it hasn’t yet been scheduled. The nurse told us to expect a call to schedule the surgery any day. Once it gets scheduled, we will start making plans and calling the insurance company and all that. I am dreading dealing with the insurance company if they refuse to pay for JJ’s surgery because it’s “out of network.” I think it’s appalling that we pay all this money for insurance and then they refuse to pay for procedures we need. It seems like a scam to me. If I pay for a product, I ought to be able to get it without a fight. Insurance companies always reminds me of the scene in “The Incredibles.”  I hope we will find a Mr. Incredible to help us if we need him.

JJ is concerned about the discomfort of a five hour trip home after the surgery, so we have begun discussing the possibility of renting a conversion van or small RV so he can have a more comfortable ride home. 

A local friend told me that she’d come take care of our cats when we are gone. She loves cats so I know that she will take very good care of ours. She offered to take Danny home with her, but I do not know how he will react to small children. I’d prefer to have him stay at home in familiar surroundings but he’d need to be let outside twice a day. My friend could let him out once when she cared for the cats, but she has a large family and I think it would be too much to ask for her to stop by two times a day. I’d need another person to him out second time. I’ll probably end up having him boarded at our vets. He can endure it for the few days we will be gone.

Those are the things we are considering.

As busy and tired as we have been running to the Cancer Center, we haven’t had time to exercise and I feel flabby and slushy. I’m looking forward to walking Danny again and getting into shape. So is EJ. Yesterday I walked on the treadmill for an hour, and EJ and I walked Danny. It was icy and slippery outside, but as the weather warms we are determined to get into shape.

We still have a lot of cold and snow outside, but my thoughts are turning more and more to Spring. I have had so much fun watching the birds that I am hoping to “birdscape” the yard to attract more birds. This includes intentionally planting things to attract birds and putting in more bird feeders and houses. Little-by-little I am going to put more feeders up outside our living room windows and little-by-little I am going to put up more houses outside the kitchen window. 

I bought two of these houses from The Birdhouse Depot.
I bought two of these houses from The Birdhouse Depot.

We installed one bird house outside the kitchen window last spring. I wanted to add a couple more this spring, so a few weeks ago I searched Amazon.Com. for birdhouses. Most of the reviews for bird houses there were negative: They were not well made, they were flimsy, they split where they were stapled. So I expanded my Internet search. After much searching, I finally found The Birdhouse Depot. The prices were very reasonable, the products were made in the USA, and they looked well-made. They offer kits or assembled houses, and bargain or deluxe models. The deluxe models have vents and removable sections so they can be cleaned. I ordered two of a deluxe multi-family house called “Clearwater.” They arrived on Saturday. They exceeded my expectations. I highly recommend them. Here is a peak inside the deluxe house. As you can see from the video below, it is very luxurious. Only the best for our birds:

Ok, maybe not 🙂 But the houses are so pretty and well-made, and I was so pleased with them that I wrote an email to the owners to tell them so. They wrote back to thank me and to ask that I send a picture to them when I get them put up. I will do that. I can’t wait to get the houses painted and put up, but I have to wait to paint them until smells don’t bother JJ and I can’t install them until it gets a little warmer. The ground needs to be soft so we can put up posts.

It will be so much fun to work in the garden and watch the birds. 

Cancer Center Goodbyes

Today was a very special day because it was JJ’s very last day of Chemo. I think the three months of cancer took forever to get through and yet also went very fast.

Today JJ had a nurse we had never seen before. Pamela told us that she works in the radiation part of the Cancer Center, but usually helps out in the Chemo part every other Friday. We just never were in Chemo on the same Fridays as she was. At first I felt disappointed that on this last day we didn’t have one of our regular nurses, but Pamela was kind and funny and we were glad to have met her.

It was sort of a bittersweet day. We are overjoyed to be done with Chemo, of course. Cancer is a nasty, horrible, no good disease and Chemo is rough, especially with the intense regiment that JJ had. It’s rough on the cancer patient and rough on the families.

However, the medical staff was awesome. They were kind and compassionate, cheerful and supportive during a very difficult journey. It’s sort of hard to say “goodbye” to them. All day they were saying “This is your last day! Yay!” At the end of the day, Pamela gave Jared a rose and a little plaque with “Ten Commandments of Cancer Survivorship” on it as a goodbye gift from the Chemo staff to him. That was unexpected and sweet. Many of the staff also gave him hugs. We will stop in to say “hi” to them during follow-up visits with the oncologist.

I took pictures of all the medical staff who had cared for JJ. I didn’t let any of them escape. Well, most of them. Some weren’t here today, so I wasn’t able to get their pictures. Bummer. But at least I got pictures of most of them. (You can click on the pictures to make them larger and to read the captions.)

JJ isn’t feeling well today, and he will still have a rough day or two, but once the Chemo gets out of his body he should start to feel better. Now he just needs to have some medical tests and a visit with the oncologist. At that time we will learn more about where we stand with this cancer. JJ will also need to have surgery to remove the cancerous lymph nodes.

Thursday

We made it through yesterday’s Chemo ok. JJ hasn’t been feeling very well this week, but he hasn’t been vomiting so that’s good.

I slept in EJ’s lazy boy chair last night. It’s easier to sleep near JJ so when my alarm goes off to give him his anti-nausea med, I can get up, give him the med, and go back to sleep without fully waking up. About 5 a.m. our cat Kee-Kee woke me when he crawled onto my neck and fell asleep. Lately he has preferred to sleep up near my face. It’s sort of difficult to sleep with a heavy cat on my neck, but also kind of interesting. Little Bear and Luke were also sleeping on me, one on my legs and one on my lap. I love cats sleeping on me.

We had to be at the Cancer Center at 8:30 a.m. again today. We were in Room 4 today. Sue was our primary nurse. She is one of our favorite nurses. She told us that she was glad she was able to care for him today, because she hasn’t been his nurse for a while. She said that JJ is one of their favorite patients and the nurses all “fight” over who gets to care for him. She said they all say”I will take care of him today,” “No, I will!” “No, me!” It’s nice to hear that about my son. JJ is always really polite to the nurses and thanks them whenever they do anything for him.

Tomorrow is JJ’s last week of Chemo. All the medical staff has been commenting that this is his last week. Today the doctor’s secretary stopped in JJ’s room to give us the appointment times for JJ’s CT scan, Pulmonary Function Test, and next appointment with the oncologist. She also said we should be getting a call soon from the hospital in Indianapolis to set up a date for JJ’s surgery.

Nasty weather was forecast for us today: freezing drizzle, heavy fog, high winds, and thunderstorms. I was concerned that the drive in would be slippery, but the bad weather had not yet reached us so the drive was uneventful. It snowed very heavily for a couple of hours, and there were reports of “thunder snow” in many counties but we didn’t hear any in the Cancer Center. Bummer. Shortly before we left the Cancer Center it began to drizzle. EJ said it was quite slippery on the way home, but he drives so skillfully that I couldn’t tell.

After we got JJ settled at home, I walked to the post office, the bank, and the little store. The sidewalks were all slushy. I’m hoping it doesn’t get cold tonight before EJ gets home from work so he doesn’t have to drive home on icy roads. We could also get rain, which could cause flooding, and high winds. I will be glad when EJ is safe at home.

Tuesday

This morning we again had to be at the Cancer Center at 8:30 a.m. We had about five or six inches of new snow, but EJ had no problem getting us to our destination.

We were in Infusion Room 9 today. It’s the first time we have been in this particular room. It was much like the other rooms except it didn’t have any windows. I do hate not being able to see outside, but oh, well.

Today the oncologist stopped by to see JJ. He asked him a few questions about his health, listened to his breathing, and so on. Then he told us that he wants to see JJ two weeks after his chemo ends. Before his appointment, JJ has to have a CT Scan, a Pulmonary Function Test to examine his breathing (Chemo can affect his lungs), and a blood test to measure the cancer markers in his blood. The nurse will set up all these appointments for us. So although JJ won’t be having any more Chemo after this week, our schedule will still be quite busy.

After the doctor makes sure everything is ok, JJ will be scheduled to have surgery in Indianapolis to remove the cancerous lymph node in his back. JJ often mentions how much he dreads it.

Usually JJ feels pretty well during an intense week of Chemo until about Wednesday. This time, however, he didn’t feel well after his Monday session, and he feels worse today. He is looking pale and sickly, and his face is sad. His eyes look like a suffering puppy dog’s eyes. It wrings my heart. This is going to be a long week.

But two days of his last week of Chemo is finished and there are only three more left.